The National Intellectual Disability Database is a database of information about people who are receiving intellectual disability services in Ireland or who are in need of these services. The objective of the database is to ensure that accurate information is available about the needs of people with intellectual disabilities. Services are planned and co-ordinated on the basis of the information contained in the database.
The information on the database is gathered by service providers who are in contact with people with intellectual disabilities. For example, Local Health Offices, voluntary bodies, and school principals. The information is given to Health Service Executive Local Health Offices.
The information is collected at national level, without any personal details such as name or address, and it is analysed by the Health Research Board. The statistical information is used to monitor current service provision and to predict future service requirements.
If there are details about you on the database, these details may be accessed by:
The statistical information from the database, that is, information that does not identify any individual person is available to:
A National Database Committee considers requests for access to statistical information from the database and where it is appropriate, makes this information available.
The National Intellectual Disability Database Committee issues an Annual Report each year containing information on the current level of service provision.
The Data Protection Act, 1988 and the Data Protection (Amendment) Act 2003 applies in the normal way to information on this database. This means, in summary, that you (or your parent or guardian if you are a child) have a right to:
If you have any questions about the National Intellectual Disability Database contact the Disability Office in your Local Health Office.
If you feel that inaccurate information about you is being held you should contact the Data Protection Commissioner:
If you have a question relating to this topic you can contact the Citizens Information Phone Service on 0761 07 4000 (Monday to Friday, 9am to 8pm) or you can visit your local Citizens Information Centre.