National Intellectual Disability Database
The National Intellectual Disability Database is a database of information about people who are receiving intellectual disability services in Ireland or who are in need of these services. The objective of the database is to ensure that accurate information is available about the needs of people with intellectual disabilities. Services are planned and co-ordinated on the basis of the information contained in the database.
The information on the database is gathered by service providers who are in contact with people with intellectual disabilities. For example, Local Health Offices, voluntary bodies, and school principals. The information is given to Health Service Executive Local Health Offices.
The information is collected at national level, without any personal details such as name or address, and it is analysed by the Health Research Board. The statistical information is used to monitor current service provision and to predict future service requirements.
Access to the database
If there are details about you on the database, these details may be accessed by:
- You (or, for a child, by the parents or guardians)
- By a small number of people working for your service provider and/or your Local Health Office
The statistical information from the database, that is, information that does not identify any individual person is available to:
- The Department of Health
- The Health Research Board
- Approved researchers
A National Database Committee considers requests for access to statistical information from the database and where it is appropriate, makes this information available.
The National Intellectual Disability Database Committee issues an Annual Report each year containing information on the current level of service provision.
The Data Protection Act, 1988 and the Data Protection (Amendment) Act 2003 applies in the normal way to information on this database. This means, in summary, that you (or your parent or guardian if you are a child) have a right to:
- Get a copy of the information held about you on the database. You can do this by contacting the Database Co-ordinator in your Local Health Office.
- Have any inaccurate information corrected or removed.
- Complain to the Data Protection Commissioner if your rights are not respected.
Where to apply
If you have any questions about the National Intellectual Disability Database contact the Disability Office in your Local Health Office.
If you feel that inaccurate information about you is being held you should contact the Data Protection Commissioner: